My name is Kennedy and I am an 13 year old girl with Autism, Chiari Malformation Type 1, and Syringomyelia. I had my second brain surgery for my Chiari a few years ago. Things didn't go very well. I wound up on vent support with bilaterally paralyzed vocal cords.
Life was rough. I spent weeks on life support and as my body started failing under the pressure, my mom decided that a tracheotomy tube was my only chance at semi-normal life. Doctors told her without it, I would never breathe on my own again.
After receiving my trach tube, I started to progress and eventually my vocal cords started to move! I was decannulated and am now still in rehab and therapy. I am working hard... everyday in every way.
I am now a Children's Miracle Network child and a Make-A-Wish kid :) and I believe that I am capable of anything. I care about kids and I know what they go through. I just want to share my story and share my prayer that all kids who need miracles receive them.
Life was rough. I spent weeks on life support and as my body started failing under the pressure, my mom decided that a tracheotomy tube was my only chance at semi-normal life. Doctors told her without it, I would never breathe on my own again.
After receiving my trach tube, I started to progress and eventually my vocal cords started to move! I was decannulated and am now still in rehab and therapy. I am working hard... everyday in every way.
I am now a Children's Miracle Network child and a Make-A-Wish kid :) and I believe that I am capable of anything. I care about kids and I know what they go through. I just want to share my story and share my prayer that all kids who need miracles receive them.
Please hit the donate button below to help me and my mom out in any way that you can. Every little bit helps :)
(P.S. You don't need a PayPal account)
(P.S. You don't need a PayPal account)