Last Friday night I wound up in the emergency room doubled over in pain. I knew things weren't great because I am the one who asked mom to bring me.
She had asked me twice that day, but i am great and being honest about my pain tolerance. Once there, I was ready to go home...
During Summer things can be rough. When temperatures rise, my headaches get pretty bad. Coupled with my new stomach problems...it sucks. Sometimes I watch kids through the window running and playing and it can be hard.
All I want to do is go out there without pain and ride a bike maybe. But riding a bike is something I just won't ever do. Hey, it never stopped my mom from buying them for me. Just waiting for the day I could ride one of them. I love her for that. For always seeing me as just a girl. Normal and perfect.
She and I have started taking walks. My legs hurt so badly but it is fun to see just how much I can do. I feel very proud of myself.
So maybe my Summer looks different from most kids, but I find my ways to have fun and be creative.
Wanna be a pal or teach your kids to be a pal to a special needs middo? Don't harp on what you believe they can't do....focus and find joy in what they CAN do. It makes all the difference.
Hey! I am a 10 year old girl living with Autism, chiari Malformation Type 1, Syringomyelia. I love to draw, paint, take photos, make crafts, and hang out with my mom. Life gets tough sometimes, but mainly I'm just a rocking girl like anyone else!