My mom and I have been out of town a lot this year! I know it is snowy and cold, but my mom loves to travel and that means I get to go too!!!
We were sliding around the bridge one weekend trying to go out of town and a surprise ice storm came! I was so scared. But my mom made it like an adventure.
We found a hotel and got lots of snacks and stayed up all night. It was so much fun.
All I need is a miracle...and maybe a little ice cream.
Did you hear the scoop? Radiothon will be held at a NEW location!
Give a miracle to a child in our community by supporting the 2015 GIANT Food Stores' 2015 I Care for Kids Radiothon. Tune in to WIOV 105.1 or join us for the fun as we broadcast live from The Turkey Hill Experience in Columbia, Pa. Our goal is to raise $125,000 to purchase specialized equipment, support patient programs, and jump-start innovativeresearch at Penn State Hershey Children's Hospital.
Friday, February 6: 6:00 a.m. - 7:00 p.m.
Saturday, February 7: 6:00 a.m. - 7:00 p.m.
The Turkey Hill Experience, 301 Linden Street, Columbia
Here's How You Can Help~To make a donation during the event, call 1-877-543-7365. While we welcome gifts of any amount, each donor who pledges $25 a month or makes a one-time gift of $300 will receive a shirt designed by Miracle Child Tyler, a cancer survivor. Check out his cute design!
~You can donate online.
~You can create a personalized, online fundraising page and ask your friends and family to donate. Click here to get started.
Radiothon Background During the event, radio personalities interview Miracle Children, their families and Children's Hospital staff. Be prepared to be inspired by the ways your support can help sick and injured children in our community.Cumulus Media Harrisburg held its first Radiothon to benefit Children’s Miracle Network in 1998, and since that time, Cumulus, its partners, and listeners have raised more than $4 million for Penn State Hershey Children’s Hospital.
Thank You To Our 2015 SponsorsPresenting Sponsors:
What a year. What a time. What a blast we have had. My mom and I will write some of this post together.
My life is so great. I feel so great most of the time. I have these bad migraines and have to stop doing some things, but I am loving doing school at home. My mom is the best teacher ever!
I work hard and I am getting so much better at crafts and creations and I have time for it all now. My schedule is so perfect. Even when I don't want to do school work we set the timer and I get it done.
This new year 2015 I have tons of projects and big assignments, and I will get them all done. My mom will help me.
Yes! Kennedy is a hard worker and every time someone tells me how "sorry" they are for her "situation" I have to let them know that this "situation" is our normal everyday life. We love it and as the days go on, we are having a better time figuring it all out.
No more heavy appointments for a few weeks and in the meantime we are going to be learning a ton, hanging out, and enjoying this new year filled with new possibilities.
Be on the lookout for the amazing things Kennedy will be doing in 2015!!!
I don't like the holiday Halloween. I never did. I realized when I was younger that I couldn't eat all the candy you go around and get so what is the point?
There is no point at all. People in masks costumes with loud sounds. I kind of hate all of it.
I don't think it is good to make children who hate halloween go to the trick or treating. What is the point of that? Kids should have more control over the holiday fun stuff.
My mom never makes me go. She buys me costumes or makes them every year but never makes me go. She asks me all the time but when the holiday is here she lets me just stay home. We used to give out candy but my mom hates the GMOs. I hate them too. So then we gave out healthy stuff like bags of pretzels and apple slice bags whole oranges and stuff. but kids threw them in our trash can and didn't eat them.
Now we don't waste our time or money. Instead we went out of town and had so much fall fun!
My point is that you can make whatever holiday traditions and stuff that you want to. Especially my special friends. We just go with the wind and my mom has taught me not to care what anyone else is doing. just to do my own thing.
So I went out of town and got some makeup! We spent the trick or treat night watching scary movies with candles and pajamas. It was the best night ever.
glad halloween is all the way over and the scary pumpkins will go away.
I love to go to school. I love being home for school. I don't even know how/why I get these headaches all the time.
So my mom said that I just needed to stay home in the bed today to fully rest. I felt a little bit better and even closed my eyes not a nap at one point.
I am happy to be home for school . My mom loves me and gives me hugs all day. All the time. I am so lucky to have a mom like my mom.
So missing school is good when I miss it and good when I am feeling better.
I have been very busy. For a few weeks I was very sick and I do NOT like to talk to people when I am feeling sick.
I have some Chiari friends who like to read about and see/hear when I am sick but not all the time I want to do it.
You get it right?
Well, the Fall is here and I just love it. After my bad allergies stop bothering my nose and face and eyes, I just love the leaves and taking short walks- although my right leg has been hurting me. It almost burns. WEird right?
School is killer crazy hard!! I love it though. Some days I even cry because it is so hard, but I am feeling very smart and am making A's and just some B's. At my old school I think I was the "sick kid" and got treated a little special.
That was good because I needed it, but at my new school I made sure no one knows that I am sick so I am just like everybody else.
This is what special kids want. we want to be just seen just like \all kids because we are LIKE ALL KIDS!! I will make a video about this this week. just about this topic.
Well, I have to go. I have tons tons tons of work and did a test in geometry and got a 106! I found the missing angles of scalene triangles and the missing angle of parellograms too! I am wicked smart.
Nothing stops me. I even got lots of gold stars.
No matter how old I get I just love Dr. Seuss. I love him.
Another thing I love are weekends. This weekend I got a game I ordered in the mail. Pokemon White and all I want to do is play it but my stupid headaches keep getting in the way. I have to stop and take breaks.
Also my mom is calling my doctor this week. I have been very sick lately and it just sucks. I have a good feeling that I am just fine, but I have to.
Ugh. Oh well, off to play my games.
Look what I found.! I can't believe less than a year ago the doctors told me that I wouldn't talk, walk, or breathe on my own.
Feeling good today. Yes I am.
I am strong.
School at home is HARD! Mom is much more strict than the teachers!
I think they treating me a bit like a baby. Mom is NOT.
I am mearning so much though. Already had 2 unit tests!! I feel so smart!
I am working so hard. Reading. Math. Literature. Tons of other stuff too.
This week I am very sick. So it is so rough. Mom has not slept at all. Awww man.
Okay going to bed.
This has been one long Summer. It feels great not having any scheduled surgeries or scans. I do have to re start physical therapy though. UGH I am so bummed about it.
I have vestibular vertigo which makes me feel like the entire world is spinning 1000 times. So this is supposed to help. I hope my neurologist is right.
Well, I did spend the Summer thinking about school---or should I say my mom did. She worked so hard with new schools and making sure we found the best placement for me and we did!!!!!
I am NOT going back to my old school! I went there for 5 years if you count last year when I barely was there at all. Lol. Cyber school is such a great fit for me. I am so so so excited. I've met some new people already and am looking forward to still attending some of the fun stuff at my old school.
I will miss the few friends I have and definitely the teachers who have been so nice to me, but this is all for the best. I actually think that my mom is more excited than I am.
Now I don't have to be the sick kid in the class. Or the kid who is late (from doc appts) etc. I get a fresh new start!
Yay!!!!!!!!! BUT...it seems so much harder than regular school Lots more work. Lots more. But hey I'm 10 now I can do it!
Hey! I am a 10 year old girl living with Autism, chiari Malformation Type 1, Syringomyelia. I love to draw, paint, take photos, make crafts, and hang out with my mom. Life gets tough sometimes, but mainly I'm just a rocking girl like anyone else!